Training and education in genetics for maternal and child health (MCH) health professionals initiatives support programs for MCH practitioners in all health and public health professions.
Advances in genetics help improve scientific understanding of diseases, and present the challenge of incorporating this information and technology into MCH health care and public health practices. Therefore, ensuring that MCH health care and public health practitioners are aware of how advances in genetics affect health promotion, disease prevention, diagnosis, and management for the MCH population is imperative.
Training and education in newborn screening and genetics for MCH health professionals initiatives help MCH health care and public health providers integrate the latest findings of newborn screening and genetic research into their practices. To this end, the Genetic Services Branch supports the following:
The Genetics in Primary Care Institute provides models, best practices, and dissemination strategies for ensuring optimal integration of genetic medicine content and concepts into primary care practice.
The Family History for Prenatal Care Providers project is developing an interactive, point-of-care family history and genetic screening tool for primary-care providers delivering prenatal care. The project is the product of multiple collaborations, lead by the National Coalition for Health Professional Education in Genetics (NCHPEG) and includes a partnership with Harvard Partners, March of Dimes, and the Genetic Alliance.
The Family Health History Integration into Community Health Centers project is integrating the Does It Run In the Family? toolkit into six HRSA-funded Community Health Centers across the country. The project educates Health Center providers and staff—along with the patients and community members they serve— about Does It Run In the Family?, and through this tool explain the use and importance of family health history in practice across the lifespan.
The National Consumer Center for Genetic Resources and Services (NCCGRS) works to enhance access to quality information, the sharing of quality and vetted resources, peer-to-peer partnership, and organizational development resources in order to achieve parity in access and to increase the quality of care. http://geneticalliance.org/
The Does It Run In the Family? toolkit was designed to be complementary to many existing tools, including FHH collection tools such as the U.S. Surgeon General’s My Family Health Portrait (MFHP http://www.hhs.gov/familyhistory/). While MFHP allows users to enter their own health histories as well as the health histories of family members, the Does It Run In the Family? toolkit provides the “how” and “why” behind collecting and entering that information. Anyone who uses MFHP should jointly use Does It Run In the Family? to understand the importance of the collection and learn tips for talking to family members about health. http://www.familyhealthhistory.org/ 