Integrated Child Health Information Systems
Wednesday, June 30, 2004

Overview | Presenter Information | Agenda | Resources | Archive

Handouts, Resources, and Readings

Reminder: Check the Technical Requirements section for assistance with downloading the presentations.

Deborah Linzer's Presentation

• PowerPoint Format (.09 mb)
• MS Word (text) Format

Sherry Spence's Presentation

• PowerPoint Format (.75 mb)
• MS Word (text) Format

Dave Ross' Presentation

• PowerPoint (.29 mb)
• MS Word (text) Format

• All Kids Count/Public Health Informatics Institute. Framework for Integrating Child Health Information Systems: Principles and Core Functions. JPHMP. 2004: In press.
• All Kids Count/Public Health Informatics Institute. Integration of Newborn Screening and Genetic Service Systems with Other Maternal & Child Health Systems: A Sourcebook for Planning and Development. June 2003. Available at: http://www.phii.org/. Accessed April 16, 2004.
• All Kids Count/Public Health Informatics Institute. Integration of Newborn Screening and Genetic Service Systems with Other Maternal & Child Health Systems: A Tool for Assessment and Planning. October 2003. Available at: http://www.phii.org/. Accessed April 16, 2004.
• American Academy of Pediatrics, Newborn Screening Task Force. Serving the Family from Birth to the Medical Home: Newborn Screening: A Blueprint for the Future (A Call for a National Agenda on State Newborn Screening Programs). Pediatrics. 2000(Suppl);106: 389-427.
• Desposito, F, Lloyd-Puryear, M, Tonniges, TF, Rhein, F, Mann, M. Survey of pediatrician practices in retrieving statewide authorized newborn screening results. Pediatrics. 2001;108:1-8.
• Health Insurance Portability and Accountability Act of 1996, 42 U.S.C. § 201. Available at: http://www.hhs.gov/ocr/combinedregtext.pdf
• Kim S, Lloyd-Puryear MA, Tonniges T. Examination of communication practices between state newborn screening programs and the medical home. Pediatrics. 2003; 111:125-126.
• Linzer D, Lloyd-Puryear MA, Mann M, Kogan, MD. Evolution of a Child Health Profile Initiative. JPHMP. 2004: In press.
• National Newborn Screening and Genetics Resource Center. Fiscal Year 2004 Integration of Newborn Screening & Genetic Service Systems with Other Maternal and Child Health Systems Conference Summary, October 2003 and other related materials. Available at: http://genes-r-us.uthscsa.edu/.
• Therrell, BL, Panny SR, Davidson A, et al. US newborn screening system guidelines. Statement of the Council of Regional Networks for Genetic Services. Screening. 1992;1:135-147.
• Webcast of preconference skill building workshop at AMCHP Annual Meeting, February 29, 2004: "A Framework for Integrating Child Health Information Systems (CHIS)"
  http://128.248.232.90/archives/mchb/amchp2004/sun.htm
• The National Health Information Infrastructure
  aspe.hhs.gov/sp/nhii
• Toward a National Health Information Infrastructure, June 2000, National Committee on Vital and Health Statistics, Toward a National Health Information Infrastructure, Interim Report
  http://www.ncvhs.hhs.gov/NHII2kReport.htm
• Public Health Informatics Institute
  http://www.phii.org
• Developing Child Health Information Systems: A Vision for Child Health Information Systems
  http://www.phii.org/actionplan.html