FAMILY-CENTERED CARE FOR CSHCN

The National Survey of Children With Special Health Care Needs measured families’ satisfaction with their children’s care using five indicators: whether or not the child’s provider spends enough time with the family, listens carefully to the parents, makes the parent feel like a partner in the child’s care, is sensitive to the family’s values and customs, and provides the specific information that the parent needs. Taken together, these questions provide an indication of how family-centered the care that CSHCN receive is.

Approximately one-third of families reported that their children’s care did not meet at least one of these five criteria. The one most commonly reported missing is the provision of information: over 19 percent of CSHCN see providers who do not usually provide their families with the information they need. Over 16 percent said that their children’s providers did not spend enough time with the family, and 14 percent said that their children’s providers did not usually make them feel like a partner in their children’s care.

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