INJURY PREVENTION FOR CHILDREN WITH
SPECIAL HEALTH CARE NEEDS (CSHCN)
RESOURCE GUIDE


Safe Kids are No Accident: Safety Tips for Special Kids

Dauphin County SAFE Kids Coalition
C/o Milton S. Hershey Medical Center
500 University Drive, Rm. 1318
Hershey, PA 17033

P#: 717-787-8092 ext. 254

Discusses bath safety, passenger safety, fire safety, bed safety, and poison prevention tips for CSHCN. Identifies unique challenges with specific special needs and lists several resources for each risk area.


Kids are Riding Safe/ Special Kids are Riding Safe Program (KARS/Special KARS)

National Easter Seal Society, KARS Program
Contact: Michelle Chillson
230 West Monroe, Suite 1800
Chicago, IL 60606-4802

P#: 312-726-6200
TDD: 312-726-4258
FAX: 312-726-1494

Web site: www.seals.com

A comprehensive hospital-based child passenger, safety education program that assists hospitals in developing initiatives to ensure that all infants and children are transported in appropriate restraints. Materials include a product guide for special needs transportation.


Indiana's Mobile Teaching School Bus Project: Provides training and information to transportation professionals to insure safe and proper school bus rides for preschoolers and children with special needs.

Riley Hospital for Children
Community Education Department
Contact: Kentin Gearhart
575 West Drive, Room 008
Indianapolis, Indiana 46202-5272

P#: 317-278-0506
FAX: 317-278-3221
Email: kgearhar@iupui.edu

A teaching laboratory for bus drivers, transportation directors, rehab specialists, special education professionals, and parents. Offers recent safety technology on occupant protection systems for transporting CSHCN.



All Safe in Their Seats (video)

Strategies Training Systems
P#: 800-600-5636

Cost: $150

A training video for bus drivers and transportation directors on the safe installation of equipment and the correct positioning and restraint of CSHCN.


Fire Safety for Children with Special Needs
Tip Sheet for Fire Instructors working with Children with Special Needs. Also contact for additional resources on fire, bike, and pedestrian safety for children with disabilities.

James Whitcomb Riley Hospital for Children
Community Education Department
Contact: Karen Bruner Stroup
575 West Drive, Room 008
Indianapolis, Indiana 46202-5272

P#: 317-274-2964
FAX: 317-278-3221
Email: kgearhar@iupui.edu

Guidelines for teaching fire safety to children with special needs; highlights the need for alerting local fire departments of special needs children in the community. Tip sheet for fire instructors identifies ways to adapt fire safety lessons to target CSHCN.


Diagnosis Related Injury Prevention Suggestions

Ohio Department of Health
Division of Maternal and Child Health
Bureau of Children with Medical Handicaps
246 N. High St.
P.O. Box 118
Columbus, OH 43266-0118

P#: 614-466-1549
Web site: http://www.state.oh.us/doh

Each of several diagnosis specific tables identifies potential injury, risk-related signs and symptoms, and suggested prevention activities for CSHCN.


Safety and Injury Prevention for Persons with Disabilities

In Grosse, S. J., and D. Thompson (ed.), Play and Recreation for Individuals with Disabilities: Practical Pointers. (1993) Reston, VA: American Alliance for Health, Physical Education, Recreation, and Dance.

AAHPERD Publications: 1-800-321-0789

Cost: $28/nonmember; $21/member

Identifies risk areas for injury to CSHCN during play and recreation.

Bike Safety Video for Hearing Impaired

Floyd County SAFE Kids
Contact: Diane Warner
436 Broad St., Suite 100
Rome, GA 30161

P#: 706-802-5031
FAX: 706-802-5031

Cost: $5

A closed caption video for children ages 0-15 on bike safety.


Transporting Students with Disabilities

The Federal News Services, Inc.
P.O. Box 8548
Silver Spring, MD 20907-8548

P#: 1-800-421-2795
Email: NLPubs@aol.com

Cost: $147/year; 22 issues

Twice monthly newsletter targeted to give up-to-date information on recent legislation and technology for special needs transportation.


Violence and its Impact on Young Children with Disabilities (video)

Distance Learning Center
5347 William Glynn Highway
Gibsonia, PA 15044-9644

P#: 412-961-0294
FAX: 412-443-1310

Cost: $35

Video by the Pennsylvania Department of Health and the National Early Childhood Technical Assistance System (NECTAS) on the scope of violence in CSHCN. Identifies risk factors and characteristics for both perpetrators and victims and describes intervention strategies that support CSHCN affect by violence.


Automotive Safety for Children Program (ASFC): A statewide program that deals with safe transportation al all children, including children with special needs. Develops and distributes educational and informational resources.

Automotive Safety Program for Children
575 West Drive, Room 004
Indianapolis, IN 46202
Contact: Judith Talty

P#: 317-274-2977, 800-543-6227 ()Indiana Only)
FAX: 317-278-0399


Rolling Along: Children in Wheelchairs at School (video)

Lerner Managed Designs, Inc.
P.O. Box 747
647 Massachusetts, Suite 209
Lawrence, KS 66044

P#: 785-842-9088
800-467-1644
FAX: 785-842-6881
Email: lmdi@midusa.net
Web: www.lmdusa.com

Cost: VHS/Manual/Test Packet $198, Rental/Skill Tape $50

Video produced by the University of Colorado, School of Nursing. Discusses safety in transferring, transporting, and positioning of children in wheelchairs at school.


Safe at School: Planning for Children with Special Needs (video)

Lerner Managed Designs, Inc.
P.O. Box 747
647 Massachusetts, Suite 209
Lawrence, KS 66044

P#: 785-842-9088
800-467-1644
FAX: 785-842-6881
Email: lmdi@midusa.net
Web: www.lmdusa.com

Cost: VHS/Manual $229, Rental $50

Video by the University of Colorado, School of Nursing on assessing, planning, implementing, and evaluating the school environment for the safety of children with special needs. Discusses possible procedures and interventions that reduce the risk of injuries and identifies roles school personnel can play in preventing injuries.


When Your Child is Technology Assisted: A home care guide for families

Research and Training Center in Rehabilitation and Childhood Trauma
New England Medical Center
Department of Physical Medicine and Rehabilitation
750 Washington St., #75K-R
Boston, MA 02111

Voice/TDD: 617-636-5031
FAX: 617-636-5513
Web site with order form: http://www.nemc.org/rehab/kahnbook.htm

Cost: $5, single copies

A 64-page guide on preparing for home care for a technology-assisted child that includes safety precautions when setting up the home. Fire safety, room arrangement, and oxygen handling procedures are discussed.


CSHCN-L: Children with Special Health Care Needs-Listserv

Institute for Child Health Policy
Contact: Donna Hope Wegener
5700 SW 34th Street, Suite 323
Gainesville, Florida 32608

P#: 904-392-5904 ext. 242
FAX: 904-392-8822
Email: DonnaHope__Wegener@qm.server.ufl.edu

List serv for the discussion of issues surrounding CSHCN. Topics have included injury prevention. Instructions to subscribe can be found at http://www.intnet.net/pub/HEALTH/Children.with.special.needs.


Hand in Hand: Essentials of Communication and Orientation and Mobility for Your Students Who are Deaf-Blind Volume I

DB Link, The National Information Clearinghouse on Children Who Are Deaf-Blind
345 N. Monmouth Ave.
Monmouth, OR 97361

P#: 800-438-9376 (V) 800-854-7013 (TTY)
FAX: 503-838-8150
Email: dblink@tr.wou.edu
URL: http://www.tr.wou.edu/dblink

Cost: Volumes I, II, Trainer's Manual and Video $170.00 plus $7.50 for shipping
American Foundation for the Blind
C/o American Book Center
Dept. J, Brooklyn Navy Yard, Building No.3
Brooklyn, NY 11205
718-852-9873

Volume I discusses the need for personal safety, safeguarding the home, and safe environments for children who are deaf-blind. Highlights both the prevention of intentional and unintentional injuries.


Maltreatment of Children with Disabilities

National Committee to Prevent Child Abuse
332 S. Michigan Ave., Suite 1600
Chicago, IL 60604-4357

P#: 312-663-3520
TDD: 312-663-3540

A working paper that discusses the prevention of abuse and neglect in children. Stresses the importance of teaching CSHCN personal safety skills that discourage maltreatment.



Adapting Home Environments for Visually Impaired and Blind Children. In Children's Environments Quarterly, Vol. 3, No. 1 (Spring), 1986

The Lighthouse Inc.
Contact: Michelle Viisola
Education Specialist
111 East 59th Street
New York, NY 10022-1202

P#: 212-821-9200
800-334-5497
FAX 212-821-9707
TDD 212-821-9713

Article suggests adaptations to home environments that ensure safety, independence and stimulation to a visually impaired or blind child.


Toys and Play: A Guide to Fun and Development for Children with Impaired Vision

The Lighthouse Inc.
Contact: Michelle Viisola
Education Specialist
111 East 59th Street
New York, NY 10022-1202

P#: 212-821-9200
800-334-5497
FAX 212-821-9707
TDD 212-821-9713

Specific section on toy safety warns against choking hazards, age appropriate toys, and other safety considerations.


Guide to Toys for Children Who Are Blind or Visually Impaired

American Toy Institute Inc.
C/O Toy Manufacturers of American, Inc.
200 Fifth Avenue, Suite 740
New York, NY 10010
P# 212-675-1141

This guide was produced through a joint initiative of Toy Manufacturers of America and the American Foundation for the Blind. For a free copy call: 800-851-9955


Fire Safety for People with Disabilities

National Fire Protection Agency
Contact: Sharon Gamache
Center for High Risk Outreach
1 Batterymarch Park
Quincy, MA 02269-9101

P#: 617-770-3000
FAX: 617-770-0700

Brochure targeted at people with disabilities. Discusses precautions that reduce fire risk and what to do in the event of a fire.


Preventing Injury in your Child with a Disability

Bureau of Injury and Disability Prevention
Contact: Susan Farrall
D.C. General Hospital
1900 Massachusetts Avenue, SE
Pediatrics Building #10
West Wing 4th Floor
Washington, DC 20003

P#: 202-727-3866
FAX: 202-544-5945

Brochure on injury prevention for parents of children with disabilities. Alerts parents to questions that identify their child's injury risk.